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In Control of my Fibro: Symptoms tracker, pacing advice and notebook for Fibromyalgia warriors

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The power of diagnosis lies in its potential to explain things previously puzzling and delineate the path ahead [ 30].

Each person with Fibromyalgia will experience it differently, but remember that you are not alone and there is support available to help you manage your condition. If we combine this information with your protected health information, we will treat all of that information as protected health information and will only use or disclose that information as set forth in our notice of privacy practices. If you’re having problems at work, your employer may have an occupational health team that could help you.

No one discipline wants to take the ownership of care for fibromyalgia patients - they are viewed as a burden.

Many symptoms of fibromyalgia are similar to those of other conditions, such as rheumatoid arthritis, Sjögren’s syndrome (sher-grenz sin-drome) and an underactive thyroid gland. A simple example would be that a minor knock for most people could be extremely painful for someone with fibromyalgia. Analysis of free text data about diagnosis of fibromyalgia generated the theme ‘A troublesome label’. The tender point examination is pretty unhelpful once a patient has self-diagnosed with fibromyalgia.

Learning about your condition and finding the best self management approaches for you is the best way to manage it.

In between flare-ups, they may be able to do lots of normal things, enjoy hobbies and activities, work, do chores, etc. Speak to your GP, pharmacist or healthcare professional if you’re taking medication and you don’t feel its helping. The American College of Rheumatology (ACR) has suggested criteria that are known as the ACR 1990 Criteria which define fibromyalgia on the basis of history and the presence of tender points. The cause of fibromyalgia is fairly unknown but is often put down to a combination of physical and mental factors. This can also be accompanied by a poor sleep pattern and fibromyalgia sufferers may wake un-refreshed and feeling exhausted.

A physiotherapist can help you to develop self-management skills to reduce the impact of pain on your life. supplement clinical opinion with the Widespread Pain Index (WPI) and Symptom Severity (SS) Scale, while 54. There are also physical therapies, psychological support and complementary therapies that may be helpful. There is no single test to diagnose fibromyalgia and often physical examination, blood tests and imaging are normal. Clair’s story shows you how she found a way back from pain to health, and to being able to live her life again.

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